Trip to ER

A spike in body temperature sent us to the ER last night.  The low blood counts last Monday suggested extra care be taken with a temperature.  After blood tests, chest x-ray, etc.  things looked normal. They gave her IV fluids, Tylenol for the temp. and sent her home about 11 p.m. The ER doc suggested that the antibiotics started on Monday may have caused the temp.  The good news was that the white blood cells had hit 10,000 (up from 500 on Monday the 16th) which was a good sign.  We’re hoping that with the counts up that the scheduled chemo on Monday might be able to go forward.  

ER folks are a special breed.  A conversation with “Tammy” suggested that God had given her this gift and she couldn’t imagine doing anything else.  Thanks for all the gifts God gives.

Counts down

Mary Jo got her first blood test on Monday.  It was disappointing.  Her blood counts were low enough that they immediately put her on antibiotics and had her continue the injections of neupogen that she’s giving herself to help stimulate the bone marrow. Since she is very vulnerable to other infections, she’s being advised to stay out of public places to avoid the germs that are around us constantly.  That means she’ll probably also take a leave from her work at church for a few weeks in addition to her leave from school.  She feels okay physically, but taking away her participation in music and social interaction is difficult.  The disease effects every part of a person’s life.

Through this Mary Jo reports feeling the presence of God with her in those occasional wakeful hours of the night.  That presence is felt as a sense of calm.  In those times a “Sounds Like Love” anthem goes through her head:  Be Still and Know That I am God.  We are thankful for this gift of peace and calm.

 

Tough week

The days following chemotherapy weren’t easy.  The medical community made a mistake and did not order an important anti-nausea drug that Mary Jo was to take for 2 days after her chemotherapy.  As a result, she found the nausea getting ahead of her for most of the week.  She felt pretty lousy and didn’t want to eat much through Friday morning.  She called the oncology nurse to ask about how to use another anti-nausea pill that had been prescribed to her.  That medication helped so now she is back to enjoying most foods again.  She did go to her rehearsals on Wednesday night, but has a lot of fatigue.  Thursday, she napped in the morning, afternoon, and evening as well as going to bed at the regular time.  

She really appreciates the cards she’s gotten.  The Sunday School classes have been taking turns providing her greetings each week.  She is really enjoying the students creativity.  Phone calls have often been good for this social butterfly. The struggle is to still enjoy this God-given life, while retiring for a time from some of the people contact that energizes her.

We’re thankful for medicines that work.  Where does the inspiration come from that allows for people to come up with these new chemical gifts?  We can only suppose that they too are God’s continuing gift of providing the health that God desires for us.

The first step on a chemical journey

On Monday,  Mary Jo had her first chemotherapy treatment.  Before that, however, she had a port inserted in her chest to minimize the number of needle pokes required over the next four months.  

Then it was off to the oncology department for the first chemo treatment.  The folks in the infusion lab are very kind and helpful.  Mary Jo received anti-nausea medication before the drug-infusion began, and some good instruction about their use for a couple of days following the chemotherapy. We got good information about side effects, including hair loss, fatigue, low blood counts, flu-like symptoms, etc.

The infusion session went on without incident.  Mary Jo slept through some of the time, possibly in response to the sedation she had earlier in the day when she had the port surgery.  She seemed to tolerate the chemicals well.  The first four treatments involve Adriamiacin and Cytoxan (doxorubicin and cyclophosphamide.)    She was also taught to give herself an injection every day for seven days to stimulate the bone marrow.  This will allow her have her chemo every two weeks instead of every three weeks.  

As always we are impressed with the professionalism of the medical staff and appreciate the caring attitudes of these folks in the helping profession.  We are glad God calls people into this kind of work that is in the end God’s work of helping and healing.  We also see God’s work in family and friends who have been very supportive through this time.  Our daughters have been very good about keeping contact by phone on a daily basis.  Our daughter, Kjerstin, and our grandsons, Johnathan and Isaac, were able to spend the weekend with us to help us get ready for this leg of the journey.  Thanks everyone for continuing prayers and thoughts.

 

Decision Made

After much prayer, conversation with family and friends, and some tense moments, Mary Jo has decided not to be part of the clinical trial.  Instead she will be aggressive with chemotherapy and undergo the usual treatment.   Doctors will put a port in her chest on Monday, November 9, and the chemotherapy will begin that same day.  She will take treatments every two weeks for four months.  She will receive shots to stimulate the recovery of her bone marrow.

A significant side effect of the chemo is the loss of her hair.  For Mary Jo, that’s a difficult part of this treatment. But she’s being proactive and in the process of purchasing a wig to help her through this time.   

For now, the oncologist has strongly recommended that she not teach during November and December.  So she has a long term sub.

Again, we thank you for your prayers, your positive thoughts, your cards, emails and overall support.

Chemotherapy

Yesterday we met with our oncologist.  It turns out that nothing is cut and dried when it comes to medicine.  Though it has a deep basis in science, it still is an art that people practice.  Mary Jo has some decisions to make concerning the next step in treating her breast cancer.  None of the options are exciting or easy.  All of them promise to decrease the chances of the cancer  recurring.  Standard treatment for this breast cancer involves 6 months of chemotherapy. Another option  involves a clinical trial–not of an experimental chemotherapy, but to see whether or not that standard treatment could be shortened to two months and involve only 1 of the standard 2 drugs.  She is a candidate for this clinical trial.

As human beings created in God’s image we are marvelous and mysterious organisms.  Our bodies are a complex conglomeration of atoms, molecules, cells, organs, hormones, tissues, etc.  With that complexity, cut and dried simply isn’t possible.  So we once again step out in trust that God will use whatever decision is made for our good and God’s glory.

No News

No real news to report on this front.  It’s a matter of waiting.  We have an appointment with the oncologist on Thursday.  We hope to hear then about the results of the testing and get a better idea of what the treatment might be and when it might begin.  In the meantime Mary Jo worked three days last week and plans to work the three day week this week with WEA convention on Thursday and Friday.  

Our daughter, Kjerstin, and her family had hoped to come this weekend, but they had illness in their family, and so they stayed  in Sioux Falls.  It was disappointing, but it was in everyone’s best interest.  They may try to come in a couple of weeks.

The waiting days are difficult.  We’ll find out if the “not knowing” is harder than the”knowing.”  This is a time for leaning on God and God’s desire for health and wholeness.  We know that the cancer is not God’s intention, but is part of our broken world.

Back to work

Mary Jo is back to work at least part time.  She worked 3 half days at school and picked up the senior choir rehearsal last Wednesday night.  She did find the days tiring, so she will maintain the same schedule this week.  While it is tiring, it’s also energizing to be back doing what she enjoys.  

We are fortunate to have our daughter Ahna, her husband Oren and grandson, Ezra with us for several days over the weekend.  Ahna has a break from teaching school in Colorado.  It’s a delight to have then here.  Sunday afternoon found the four of them in an apple orchard enjoying the great outdoors.

We’ll meet with our oncologist a week from Thursday and see where we go from here.  We know that cancer patients are told to take everything “one day at a time.”  We’re finding the truth of that statement, but still will be glad when we can know more of what to expect in the next few weeks.

Thanks for your prayers and thoughts.

Sunshine on the trail

 

On October 10 Mary Jo and our daughter, Kari, participated in a walk, run, bike event from Bangor to West Salem by walking a mile down the bike trail and back again.  It was a cold windy fall day but their hearts were warmed by the enthusiasm, the energy and the compassion of all the participants as they would meet and greet each other along the way.  The event was sponsored by a group that call themselves Sunshine on the Trail.  All the  money that is raised is used locally to give support to those whose lives have been affected by cancer.  It was very meaningful for Mary Jo to be able to be a part of this event with Kari.

Molecular testing

We went to the doctor Friday.  The surgery recovery is going well. Things are healing  and Mary Jo is feeling stronger.  Her arm is returning to normal range of motion with exercise.  Cause for celebration.

The oncologist is still figuring out what is the best treatment for her. One way  is to do some molecular testing on the specimen that has already gone through pathology.  Size and grade of the tumor, one’s age and lymph involvement all suggest that chemotherapy will help her, but this new testing may help  refine what might be best for her. We may know in a couple of weeks when chemotherapy might begin. The good thing is that this testing is being done during the healing time from surgery and  won’t push back the start of treatments.  We are on a sharp learning curve about all of this.

In the meantime life goes on.  We’re glad to have our daughter, Kari, is here for the weekend.  She has a 15 year reunion of her high school class Saturday.  How can that be?  Didn’t she just graduate?  It’s been great to have her here.

Mary Jo is looking toward getting back in the swing of things.  She’ll be in the percussion section with the senior choir at church on Sunday and is considering going back to work this coming week.  That will probably be good.  It’s one of the places that she finds her joy.

Thanks again for words of encouragement, for prayers and support. All of it is appreciated.  Some of you have already made this journey, and you are our heroes as we go forward ourselves, walking in your footsteps.  You give us courage and hope.  We thank God for each of you.